This page has been written for parents, but is relevant to anyone supporting someone who has CVI and is non-verbal, as explained in our Introduction.
We have not written a separate section of labels for non-verbal children with CVI because there are so many different labels, which are sometimes applied to non-verbal children CVI, and sometimes not, and it would become confusing.
Click here for the Alphabetical List of Labels given to children with CVI, including non-verbal children.
As the parent of a non-verbal child with CVI, especially if they have been affected since birth, it is likely that one of the following labels has been attributed to your child:
These labels are daunting. We know parents who feel their child has been wrongly 'written-off' as being so severely beyond reaching any developmental milestones, that even trying may be pointless.
These labels all measure your child against something called 'normal'. That 'normal' is in relation to another child of the same age as your child who is considered to have...
We think it is not in your child's best interests to be measured against this idea of what a normal child of the same age can do, with the underlying goal for your child to be 'more-normal', or at the very least, less abnormal.
Our advisor Gordon Dutton, responding to a mother whose son had been labelled as Severely Globally Developmentally Delayed at the age of one, a label that was considered by all those who supported him as life-long, so a life-sentence, advised her:
All exceptional people like him are autonomous independent individuals whose frame of reference is themselves, and any comparison with others is inappropriate and futile.
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At CVI Scotland we are devoted to helping people understand cerebral visual impairments, and together working towards developing the understanding of this complex condition.