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Survey for parents / caregivers of children with cerebral palsy (open)

Study: Online testing of the 'Measure of Early Vision Use' (MEVU) with parents of children with cerebral palsy

Closing Date: January 2019

Participant Details:

  • Country: any country
  • Age: Parents/Caregivers of children up to the age of 12
  • Other: The study is seeking parents/caregivers of children with cerebral palsy, or a high risk of cerebral palsy. We are seeking parents of children with a range of visual abilities.

Participant Requirements:

Parents/caregivers will be asked to complete an online survey that includes answering some basic questions about yourself and your child with CP; Completing the 14 MEVU questions (each with 4 response options); and there is the option to complete a second questionnaire on visual skills.

Purpose of Study:

This online survey is one part of a research project to develop and test a new way to assess how children with cerebral palsy (CP) use vision in everyday activities. The 'Measure of Early Vision Use' (MEVU) has been developed from talking to families and clinicians who work with children with CP and it has been tested and refined by talking to a small number of families. We are now ready to test it with a bigger group of parents.

Researchers:

This research is being lead by Belinda Deramore Denver an occupational therapist and PhD student from Australian Catholic University in Sydney.

The research is supervised and supported by:

  • Associate Professor Elspeth Froude (Australian Catholic University),
  • Professor Christine Imms (Australian Catholic University, Centre for Disability & Development Research)
  • Professor Peter Rosenbaum (CanChild Centre for Childhood Disability Research, McMaster University, Canada).

Ethics approval has been granted by Australian Catholic University HREC 2018-178H

Contact details: Belinda Deramore Denver: belinda.deramoredenver@myacu.edu.au

Link to study: If you would like to take part in this research, please click here.

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At CVI Scotland we are devoted to helping people understand cerebral visual impairments, and together working towards developing the understanding of this complex condition.