CVI trustee Helen St Clair Tracy has a son with CVI.
Helen describes her journey from blissful ignorance, to learning to see her son's world.
Many parents identify with the experiences and frustrations described here, but the overall message is a positive one, that empowered with knowledge a parent can change their child's world.
Talk given at CVI Information Day for families organised by the Scottish charity Visibility.
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At CVI Scotland we are devoted to helping people understand cerebral visual impairments, and together working towards developing the understanding of this complex condition.