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Survey for parents / caregivers of children with CVI. (closed)

Study: Survey for parents / caregivers of children with CVI. (closed)

Closing Date: Project closed 10 May 2018

Participant Details:

  • Country: Any country
  • Age: This study is open to parents/caregivers of children of any age (including adult) with CVI.
  • Children do not have to be diagnosed with CVI for parents/caregivers to participate in the survey. However, they must have visual issues that are consistent with CVI.

Participant Requirements:

Parents will be asked to complete an anonymous multi-sectioned online survey about their experiences of CVI with their child. Questions focus on how parents have developed their understanding of CVI and also, their involvement in the services their child receives. It should take around 10 minutes to complete.

Purpose of Study:

The purpose of this study is to develop an understanding of how parents access information on CVI and how they use this information to help support their child. Information gathered in this survey will help professionals understand the best ways to provide accessible CVI specific information to parents/caregivers of children with CVI.


This research is being carried out by Nicola McDowell, as part of a PhD in Education focusing on developing effective support for children with CVI. Nicola is completing her PhD at Massey University, New Zealand.

Ethics approval has been granted by Massey University.

Contact: Nicola McDowell

Survey: If you would like to take part in this research, please click here and you will be directed to the survey.


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About Us

At CVI Scotland we are devoted to helping people understand cerebral visual impairments, and together working towards developing the understanding of this complex condition.