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Corona Blog 2

In a few short days everything we know has been turned upside down.

Like millions of others, my family and I are in self-imposed isolation.

This has transformed everyone's routines and we are all having to adapt.

But the ability to adapt easily is a luxury not available to everyone.

For those families with children who need routine and predictability, this type of disruption can be disturbing.

How does this massive change in what is 'normal', impact upon children with cerebral visual impairment?

The feedback we've received has been variable, with some children adapting well, while others have been distressed, and have needed help.

The children most likely to be affected in this way are those who thrive best in places they know well and where life is predictable. This is because they need order in their lives to cope with change.

So what do they need most?

Emotional needs come first.

Mentally, if stressed, worried or anxious, children can't relax and learn.

Humour can help a lot. If the children can see the adults around them laughing and relaxed, they will also relax.

Anxiety can come from not understanding what's happening. Where possible, simple explanation of what's going on and why, helps with fear of the unknown.

It is important though, to watch out for signs of anxiety and to deal with them so they don't turn into a meltdown.

Look after yourself.

Your children ideally need you to be calm and happy, so that they don't pick up on your stress and feed it back to you! You need some quiet relaxing time to yourself each day. Don't feel you need to follow others' agendas like home schooling. Set your own.

Thinking about your child's environment.

We know that children with CVI thrive in known, secure, calm, uncluttered places.

Routine is important.

A simple predictable routine, including meal times together, exercise, games, solo quiet time, bed time and anything else that matches your family's needs can reap dividends.

Yet we need to recognise that all children need some control over their lives, which might mean longer than you would normally allow, watching TV or an Ipad. They also need to be allowed to finish what they are doing in their own time.

These are uncertain times, and everyone's individual situation is different.

Yet the world is more integrated, and has greater scientific resources to conquer this pandemic, than in any other time in history.

So there is good cause for optimism.

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About Us

At CVI Scotland we are devoted to helping people understand cerebral visual impairments, and together working towards developing the understanding of this complex condition.